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Helpful Organizations

One of the goals of the HeartRescue Project’s Life After SCA initiative is to help survivors and their loved ones get back to living happy, healthy and fulfilled lives. The following links provide you and those you care about additional resources to help you along your journey. Many are provided by national organizations dedicated to improving treatment for SCA and support for survivors.

Welcome back to life.

 

Sudden Cardiac Arrest Foundation (SCAF)

Support for patients and families who have been affected by SCA.

 

Detailed information about the exact nature of SCA, incidence, treatment and survival.

 

Personal perspectives: links to several different blogs relating to SCA.

 

Online community for sudden cardiac arrest survivors and families affected by SCA.

 

American Heart Association (AHA)

Informative graphic illustrating the difference between a heart attack and sudden cardiac arrest.

 

AHA branch locator and information on local cardiovascular and stroke initiatives and programs.

 

Sudden Cardiac Arrest Association (SCAA)

Links to articles and resources related to many of the physical and emotional concerns of survivors.

 

SCAA chapter or affiliate locator.

 

Educational resources and materials on the nature of SCA, information on ICDs and additional medical research.

 

The online membership support community of the SCAA.

 

SCA survivor stories and medical emergency response information.

 

Identify and unite survivors and those at risk of sudden cardiac arrest, as well as others who are interested in being advocates on SCAA issues in their communities and beyond.

 

Healthy Heart (India Medtronic)

Facts about SCA and the difference between heart attack and SCA.

 

Heart Rhythm Society

Information on the electrical system of a normal heart.

 

Hypertrophic Cardiomyopathy Association (HCMA)

Information on the difference between heart attack and SCA.

 

Online SCA risk assessment form to help identify those at risk for conditions that can cause SCA in the young (defined as under 50).

 

Mended Hearts

Information on recognizing and addressing depression after SCA, or any kind of heart event.

 

Advice for those caring for loved ones. The focus is on those with heart disease, but these tips are applicable to the family and loved ones of SCA survivors as well.

 

Network of 460 hospitals and rehabilitation clinics offers services to heart patients through visiting programs, support group meetings and educational forums.

 

Parent Heart Watch

State-by-state network of parents and partners solely dedicated to reducing the effects of SCA in youth.

 

 

Additional Resources

 

Adult Congenital Heart Association (ACHA)

Resources for adults with congenital heart defects and their families as well as the medical community.

 

Family Caregiver Alliance

Support for the important work of families caring for loved ones with chronic, disabling health conditions.

 

Pulse Point

CPR/AED Mobile Apps for communities to help increase the the survival rate of SCA.

 

Sudden Arrhythmia Death Syndromes Foundation (SADS)

Patient and family support materials and resources with sections providing information regarding awareness, research and advocacy.

 

Women Heart

Promotes women’s heart health through advocacy, education and support.

 

Learn the anatomy of the heart and how it functions.

 

Advice for resuming life after experiencing a heart event, especially as relates to self-care and emotional wellbeing.

 

WomenHeart support group locator.

 

Tips and resources to help you support your loved one who may have survived SCA.

 

 

HeartRescue Partner Links

 

Spokane Heart Rescue Supports Survivors

This group offers emotional support and advocacy opportunities for sudden cardiac arrest survivors and their families. Monthly meetings provide an opportunity to meet, share, connect, and learn with other survivors. Contact cathryn.st.amand@gmail.com for information. Join us on Facebook.

 

The Save Hearts In Arizona Registry & Education (SHARE) Program

The SHARE Program (within the Arizona Department of Health Services’ Bureau of EMS & Trauma System) promotes a comprehensive, standardized system of out-of-hospital cardiac arrest care throughout Arizona encompassing all “links” in the “chain of survival” – bystander response, emergency medical dispatcher CPR instruction, Emergency Medical Services provider resuscitation, and standardized care at hospitals. SHARE also seeks to support survivors of out-of-hospital cardiac arrest by providing them with helpful resources.

 

Los Robles Regional Medical Center

Offers a welcoming support group for survivors and their families which meet the 3rd Wednesday of every month at 6:30 p.m. (light supper offered). The meeting is open to anyone who desires to attend. The event typically hosts a speaker, and has covered topics such as AICDs, exercise following a cardiac event, reducing stress, diet, different reasons for cardiac arrest, therapeutic hypothermia, compression only CPR for the community and families and many others. The director of cardiology has addressed the group along with the medical director for Ventura County EMS. Contact Debbie Licht RN at Debbie.licht@hcahealthcare.com or (805) 370-4437 for more information.

 

The Arizona Affiliate of the Sudden Cardiac Arrest Network™

Survivors and their families are provided with an opportunity to find others who have experienced this life‐changing event, share experiences and help one another in the healing process, and participate in research and awareness initiatives designed to help save more lives.

 

Illinois Heart Rescue Survivor Group

The Illinois Heart Rescue survivor group is in the early stages of development and would like to bring together survivors and their families to aid in the healing process. We welcome you to contact us via our website and stay tuned for upcoming meetings and events. 

 

Minnesota SCA Survivor Network

The Minnesota SCA Survivor Network is a non-profit, grassroots organization whose mission is to support SCA survivors and their families, advocate for community access to AEDs and educate people about SCA and early defibrillation. Formed in November 2003, the Network is affiliated with the Sudden Cardiac Arrest Association, a national organization whose mission is to prevent loss of life from Sudden Cardiac Arrest; and partners with the MN Resuscitation Consortium, a statewide initiative to improve survival by improving care at all stages – bystander, EMS and hospital.